That would be a dream. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.. Our Rett syndrome research will continue to push as hard as possible to develop treatments. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. "But he will always be with us, even now he's hard at work to help other children whose lives are more difficult than they should be. But she was aware thathis condition started to worsen a few monthsago in spite of the heroic effort his parents were doing with him, she said. [17], In 2009, Engel was stationed in Kabul, Afghanistan, covering the country's August presidential election. "Sweet, beautiful, and determined. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. Henry Engel is the first of the 2 children of journalists Richard Engel and Mary Forrest The years old was . Thanks for contacting us. "Our beloved son Henry passed away. He doesn't sit up straight. Richard and Mary Engel, with son Henry on "TODAY" on Wednesday, October 3, 2018. Thank you everyone for all the kind messages, from Henry, our Mr. Handsome, he wrote in the caption. And you see him how hes struggling to really do the best he can so he can move, so he can gain some strength to crawl or do something., You feel the pain of Rett syndrome, and I felt that pain with so many patients before him, she continued. Engel announced the death of Henry in August after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. "For everyone following Henry's story, unfortunately he's taken a. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. [4] His older brother, David, is a cardiologist at New YorkPresbyterian Hospital. You just cant help it. NBC News Richard Engels son Henry has died from disorder. Theo appeared to ask before giving his big brother another kiss in the sweet moment. ", "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness," he shared. We will continue to push as hard as possible to develop treatments. Learning to take a few steps in his walker and communicating with cards and a computer.". IE 11 is not supported. "Our beloved son Henry passed away," Engel wroteon Twitter. We always surrounded him with love and he returned it, and so much more. The condition also led to dystonia, an uncontrolled shaking/stiffness. Richard Engel with his wife, Mary Forrest, and Henry. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. Get all the stories you need-to-know from the most powerful name in news delivered first thing every morning to your inbox. [29] Engel reported on events from different perspectives by gaining and maintaining frequent access to U.S. military commanders, Sunni insurgents, Shiite militias, and Iraqi families. And with a smile. In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. Henry Engel, the 6-year-old son of NBC News chief foreign correspondent Richard Engel, died last year of Rett syndrome. I love all of them, she said. Lindsay Lowe has been a regular contributor to TODAY.com since 2016, covering pop culture, style, home and other lifestyle topics. We always surrounded him with love and he returned it, and so much more. All rights reserved. ", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. The NBC News chief foreign corespondent, who has spent much of his career covering warand political upheaval,announced in an email to the"Today" showthat he and his wife, Mary Forrest, welcomed their second child, Theodore Forrest Engel, over the weekend. NBC News presenter Richard Engel has penned a tender tribute to his young son, a month on from his tragic death at six years old. The kids would come up and kiss him, tussle his hair and bring him toys, Engel shared. Legal Statement. Henry was diagnosed with Rett syndrome, a genetic brain disorder that does not have a treatment or cure, as a toddler. This material may not be published, broadcast, rewritten, or redistributed. Sitemap, Your California Privacy Rights 12,221, This story has been shared 9,366 times. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. We will keep fighting for you.". He was so hardworking and he had to do so much that a child should have to necessarily have to do. I care about all of them.. His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness., Engel continued, He was in the hospital for 6 weeks, but is now home and getting love from brother Theo., According to the Mayo Clinic, dystonia is a movement disorder in which your muscles contract involuntarily, causing repetitive or twisting movements.. This kind of relationship is very important because it reminds everybody in the lab that there are human beings at the end of the road who are waiting and may one day benefit from this work., Henry helped us make a very strong connection, she continued. "He continues to be an inspiration for Dr. Zoghbi and her team as they work to find effective treatments for Rett syndrome, and they already are making significant progress with Henrys own cells," the post says. Powered and implemented by FactSet Digital Solutions. August 18, 2022 / 1:26 PM "Our beloved son Henry passed away. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. We couldnt be more in love. Engel also talked about his wife and son's strength. He had the softest blue eyes, an easy smile and a contagious giggle, the journalist, who is married to Mary Forrest,tweeted at the time. But the one I was thinking about today was his tenacity. NBC News chief foreign correspondent Richard Engel shared a photo of his late son, Henry, on his 7th birthday. Sitemap, Your California Privacy Rights 12,221, This story has been shared 9,366 times. After developing dystonia, uncontrollable shaking and muscle contractions, his underlying health conditions got much worse, and soon, "it was too much," Engel said. Georgia Slater. "Our beloved son Henry. On Monday, the NBC News chief foreign correspondent shared a sweet video of the moment his youngest son took his first steps. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window). 13,615, This story has been shared 13,572 times. Everything to Know About Bruce Willis' Diagnosis, One Year into Ukraine War, NBC's Richard Engel Shares Insights from the Ground: 'Still in the Early Phases', their late son, his disease and the new balcony dedicated to his memory. Engel and his wife, Mary Forrest, have been candid about their sons diagnosis. . [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us," Engel wrote. In a tweet posted on Aug. 18 . In May 2006, he assumed his role as senior Middle East correspondent and Beirut bureau chief. This material may not be published, broadcast, rewritten, Richard is 49 years old. There is no cure for the condition, and people with Rett syndrome need care to treat their symptoms. [citation needed] He survived kidnapping attempts, bombings, IED attacks, and ambushes. But even with all the difficult moments, there have been joyful milestones, too such as when Henry said Dada for the first time at 3 and a half years old. Engel shared the heartbreaking news on Twitter last August. IE 11 is not supported. Its something we never saw with Henry. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. [21], Engel reported on the Israel-Gaza conflict of 2012, the continued violence stemming from the revolution in Syria and its consequent civil war, and the political transition of Egypt following the election of President Mohamed Morsi in June 2012.[22][23][24]. Our beloved son Henry passed away. We always surrounded him with love and he returned it, and so much more. Many of the people who work in the lab were also devastated by Henrys passing, but they were quick to tell Zoghbi, Were going to continue to work. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. [43], In Egypt, Engel often reported from Tahrir Square, interviewing protestors in Tahrir Square as President Hosni Mubarak surrendered power to the Egyptian military. Engel received the Medill Medal for Courage in Journalism for his report "War Zone Diary". "Henry would have turned 7 today," Engel tweeted on Sept. 29. RELATED: What is Rett syndrome? He has this smile that he looks at you youll see it in the pictures posted on the web and naturally, you fall in love with him, she told "TODAY." This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. [2] Before joining NBC in May 2003, Engel reported on the start of the 2003 war in Iraq for ABC News as a freelance journalist in Baghdad. Quotes displayed in real-time or delayed by at least 15 minutes. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. Our beloved son Henry passed away. It was an exciting Labor Day at Richard Engel's house. Engel and his wife are also parents to son Theo, whom they welcomed in August 2019. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. ", Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease. And neither did Henry. I'd add more colorful adjectives, but you get the point," wrote Engel, adding that Henry, who was 4 at the time, "doesn't walk or talk. One . "Henry had no bad qualities. Chrissy Callahan covers a range of topics for TODAY.com, including fashion, beauty, pop culture and food. His quiet fight against this terrible disease was incredible," the doctor wrote in a tribute to her little patient. Henry Engel had Rett Syndrome, which slows development or causes loss of "purposefuluse of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability," according to the National Institute of Neurological Disorders and Stroke. Richard Engel is trying to find the good on a very sad day. "Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease," Engel added on Thursday, sharing a link where donors could support research at the Texas Children's Hospital. ", Richard Engel opens up about touching milestone for son who has Rett syndrome, according to the National Institute of Neurological Disorders and Stroke, Rett syndrome: Meet the doctor trying to create a cure. Zoghbi met Henry within his first year of life, after Engel and his wife, Mary, noticed their son wasnt reaching usual motor milestones the first sign of Rett syndrome for many children, according to the foundation. So if its not functioning at 100% capacity maybe its functioning at 40% capacitymaybe if we can increase the amount of the protein, maybe that will get us to help some of the symptoms., [Henry] became a driving force in the lab because the lab members met him and knew him and played with him, she added. The foreign correspondent's son Henry was diagnosed with Rett Syndrome in 2017. Richard Engel Height. Richard Engel opens up about touching milestone for son who has Rett syndrome March 15, 2019 02:42 Engel also revealed in a first-person essay in March that Henry called him "Dada" for the first . [18], In 2011, Engel reported, at times through tear gas, on the Egyptian revolution. In April 2008, Engel became Chief Foreign Correspondent of NBC News. His cells are being used in cutting-edge research. Henry was special in so many ways. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel is trying to find the good on a very sad day. He had the softest blue eyes, an easy smile and a contagious giggle. "Hes healthy, happy (unless you unwrap his swaddle) and thirsty. His muscles are moving. Mary and Richard," Engel wrote on Twitter. The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. In the touching video Engel shared, his son Theo, who will turn 3 in August, gives Henry kisses as he lies in bed. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. "Henry was special in so many ways," Zoghbi wrote. [44][45], Engel reported on the revolution in Libya from the front lines, spending months traveling from rebel commanded areas in Benghazi to other rebel strongholds. Trump asks for mistrial in E. Jean Carroll rape lawsuit, First Republic Bank seized by regulators, then sold to JPMorgan Chase, Reward offered as manhunt for Texas shooting suspect reaches "dead end", Tornado hits Virginia Beach, damaging up to 100 homes, More Americans escape Sudan as country teeters on edge of civil war, Mental health of LGBTQ youth worsening in current "hostile political climate", Stray bullet strikes college baseball player during game, Texas police say, MasterChef Australia host Jock Zonfrillo found dead at 46, Shaquil Barrett's 2-year-old daughter dies in drowning accident. At the time, he was 3 1/2 years old and hadnt called Engel Dada yet. He didnt always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. One of the visits, I was so excited because he did say, Dada. That was a word we heard from him., Due to the pandemic and the Engels being based in the U.K., she didnt see Henry for two years prior to his death. Many of Engels colleagues, including Hoda Kotb and Savannah Guthrie, honored the young boys sweet spirit following his tragic death. Mary and Richard.. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. [They] really worked very hard to protect him and give him physical therapy so that he could be as functional as possible, she said, adding that many boys with Rett syndrome die by age 2. Richard Engel has opened up about the feeling of watching his baby son reach each developmental milestone while knowing his older son, who has a rare neurological disorder, may never reach. ", "We have a vendetta against the syndrome and we want to cure it," Forrest said about the disease. "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness.". 13,615, This story has been shared 13,572 times. We always surrounded him with love and he returned it, and so much more. Terms of Use [13], He later went to Stanford University, where he occasionally wrote for The Stanford Daily. Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. When he is upset, he screams with his whole body and kicks his legs with power. We always surrounded him with love and he returned it, and so much more. "MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the Texas Children's Hospital page explains. Richard Engel Gives Update on Son Henry amid Coronavirus Pandemic Celebrity Parents Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome Richard. [36] Engel's award-winning documentary, War Zone Diary, chronicled the everyday realities of covering the war in Iraq. link to donate to support research in Henry's memory. At times, Engel said found himself "dressed as a blue target" as a foreign journalist in Iraq. "He was in the hospital for 6 weeks, but is now home and getting love from brother Theo. NBC News Chief Foreign Correspondent Richard Engel announced Thursday that his son Henry, 6, has died. Henry lost his life to Rett syndrome and we want it gone. It also caused numerous underlying health conditions including impacting his breathing," he continued. The journalist previously announced that Henry died from Rett syndrome a rare neurological disorder that affects the way the brain develops on Aug. 18, just five years after he was diagnosed with the incurable disease. [9], After graduating from Stanford, Engel left for Cairo, feeling the region was where the next big story would erupt. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. "But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.". His schoolwork began to improve and he started to gain popularity with his peers. At the end of May, Engel had tweeted a video of Henry, writing that he had "taken a turn for the worse. Reach her at sophie.reardon@viacomcbs.com, First published on August 18, 2022 / 1:26 PM. The Duncan NRI's Founding Director Dr. Huda Zoghbi studied Henry's mutation closely. Powered and implemented by FactSet Digital Solutions. [19] He also covered the Libyan Civil War, where he was nearly shot in Benghazi. Privacy Notice Because of Henrys unique mutation, Zoghbis team is using Henrys cells in ongoing research. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondent and Beirut bureau chief. However, his son Henry suffers from a devastating diagnosis of Rett Syndrome. Youre my heroes," she wrote. On his tribute page, Henry is described as someone who "made the best of every single day and worked tirelessly in his many physical and developmental therapies.". He had the softest blue eyes, an easy smile and a contagious giggle. Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from juicy celebrity news to compelling human interest stories. All rights reserved. "A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett . We always surrounded him with love and he returned it, and so much more. The news of Henrys passing came just months after Engel revealed his sons health had taken a turn for the worse., For everyone following Henrys story, unfortunately, hes taken a turn for the worse, the NBC News correspondenttweeted back in June. ", Our beloved son Henry passed away. "We lost our son, our Henry. 13,572, This story has been shared 12,221 times. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. Engel also provided a link tothe Texas Childrens Hospital, which is fundraising for the cause. 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